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| » American Heart Association - Marfan's Syndrome - Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions. |
| » Canadian Marfan Association - Information, articles, events, a patient survey, and products. Also includes an article on Pharaoh Akhenaten who was believe to have the disease. |
| » A Diary about Marfan's - Marfan's patients diary of the diseases events in her life. Includes a list of links. |
| » International Federation of Marfan Syndrome Organizations - A global information center providing links to Organizations around the world. |
| » Life and Issues of Marfan's Syndrome - Personal site by which describes the pathology and gives a bit of advice. |
| » Living With Marfans - This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way. |
| » Marfan Association UK - The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue. |
| » Marfan Support and Information - Support group in New South Wales, Australia. |
| » Marfan Syndrome - Article from eMedicine. |
| » Marfan Syndrome - A guide to this connective tissue disease. |
| » Marfan Syndrome - Online chapter from The Merck Manual of Medical Information. |
| » Marfan Syndrome - A Question-Answer format page of information. |
| » Marfan Syndrome: Does Diet Play a Role - Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet. |
| » Marfan-List - Information about an e-mail mailing list. Also includes links to other online support groups. |
| » Marfans Research Foundation - Irish charity with information on fund raising activities and the condition. |
| » MFS Type 1 Fibrillin Gene - Major resources listed as well as genetic information. |
| » The Mystery of Akhenaten: Genetics or Aesthetics? - A history of the pharaoh along with theories applied to what he may have had, including Marfan's. |
| » National Marfan Foundation - Providing accurate and timely information about the disorder to patients, family members and physicians. |
| » Polish Marfan Association - General information including dealing with pregnancy with the disease. Also has contact information for the association and links to other organizations. |
| » Questions and Answers about Marfan Syndrome - From the National Institutes of Health. |
| » Slovak Marfan Association - The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care. |
| » South African Marfan Syndrome Organisation - Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis. |
| » Swedish Marfan Association - Here you can find plenty of information the disease including symptoms and other disorders that are similar to Marfan's. Also contains information about the Swedish Association. |
| » Univ. of Washington - Marfan Syndrome - What the disease is and includes the impacts on daily life. |
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The content of this directory is based on the Open Directory and may have been modified